Lyme Awareness Protests

This weekend will see awareness protests around the world with the aim of increasing awareness of Lyme disease and gaining proper treatment for patients and updated information, based on current research for doctors, other health professionals, and patients.


Details, pictures, and media coverage from all the protests can be found on the Worldwide Lyme Protest facebook page.


In the UK, Friday saw a Lyme awareness protest in Manchester; Saturday will see a protest outside the Department of Health in London.


See the Lyme Disease UK facebook page for coverage of both events.


If you're in London and looking for something to do tomorrow - join in the protest; take the place of someone who wishes to be there but is too ill to attend because treatment is not available....

 

If you can't do that, show your support by supporting the GoLymeGreen campaign - wear green, turn your profiles pictures green and share awareness about Lyme!


Your help could save someone's life.

Lyme Humour

If you don't have a sense of humour, survival is impossible....

Just a little video making fun of a typical appointment with a GP who knows nothing about Lyme disease.  While this is a funny little clip, most Lyme patients actually can relate to it in some way and report having experienced some kind of similar treatment - having been doubted, dismissed, ridiculed or simply not taken seriously by a doctor; other medical professional; or by a friend/ family member.

This little clip doesn't intend to 'get at' doctors - the intention is to create more awareness that there is genuinely a gap in medical knowledge - at every level - and more research and more information is needed to bridge that gap; to move away from outdated guidelines; and to truly TREAT the illness - a bacterial infection (or Lyme MSIDS - Lyme multi-systemic infectious disease syndrome) with appropriate drugs, taken for appropriate periods of time.

It's not really a big request.... 

In the meantime, we are very thankful for LLMDs (Lyme Literate Medical Doctors) who try very hard, often seeming to work against the system, to help their patients heal.

From YouTube

Shared experiences

A good clip on Lyme awareness from BBC South East today:



http://www.bbc.co.uk/iplayer/episode/b041svy2/South_East_Today_03_05_2014/


(Starts about 40 seconds in; only available within the UK - if a YouTube clip becomes available I will post an additional link)

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(From Pinterest)

A huge thank you to Sarah for speaking out and sharing her story and helping increase awareness.  And to the BBC for taking note and giving air time to this important issue.

 

Some people don't realise how hard it is, to look over your life, think of the person you once were to the outside world - to feel that person still battling inside you, just waiting to get out again - and to speak to the world about the hardest thing you have ever had to deal with.  

Imagine exposing your most personal feelings to strangers - it's not an easy thing to do, but without ALL of those sharing their stories and doing just that, we cannot increase awareness which means we can't help others.

Share your story: www.facebook.com/golymegreen2014

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(From Pinterest)

May: Lyme Disease Awareness Month

MAY is LYME DISEASE awareness month

(This first post will remain on the "Go Lyme Green" page)

On May 16, 17 & 18 protests are planned around the world in support of people battling this devastating illness

AIMS

(Further info: Worldwide Lyme Protest UK site)

Increase awareness of Lyme disease and other tick-borne diseases

Replace outdated treatment guidelines with new guidelines which reflect current scientific understanding of Lyme disease & associated infections

Demand better treatment, increased recognition, and support for patients & doctors

Help spread awareness of Lyme disease 

& support global protests online

 'Go Lyme Green'

Promote Lyme awareness through social media by making your profile pictures green

Wear something green - and tell everyone why!

Share your story, your photos & why this campaign is important to you

When?

'Go Lyme Green' will coincide with protests around the world on May 16, 17 & 18

Learn more about Lyme disease & why awareness is important for everyone

Follow us on twitter: GoLymeGreen2014

Like and share our Facebook page
(coming very soon!)

Watch this space for daily updates, personal stories & important facts about Lyme

When caught early, Lyme can be treated easily

Know the facts, don't let Lyme ruin your life